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The 36-hour day: a family guide to caring for people who have Alzheimer disease and other dementias
Average Rating
Author
Publisher
Johns Hopkins University Press
Publication Date
2021.
Edition
Seventh edition.
Language
English
More Details
Contributors
Rabins, Peter V. author
ISBN
9781421441719
9781421441702
142144173
9781421441733
9781421441702
142144173
9781421441733
Description
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Table of Contents
From the Book - Large Print - Seventh edition.
1. Dementia
What is dementia?
The person who has dementia
Where do you go from here?
2. Getting medical help for the person who has dementia
Evaluation of the person with a suspected dementia
Finding someone to do an evaluation
The medical treatment and management of dementia
The physician
The nurse
The social worker
The geriatric care manager
The pharmacist
3. Characteristic behavioral symptoms in people who have dementia
The brain, behavior, and personality : why people who have dementia do the things they do
Caregiving: some general suggestions
Memory problems
Overreacting, or catastrophic reactions
Combativeness
Problems with speech and communication
Problems the person who has dementia experiences in making himself understood
Problems the person who has dementia experiences in understanding others
Loss of coordination
Loss of sense of time
Symptoms that are better sometimes and worse at other times
4. Problems in independent living
Mild cognitive impairment
Managing the early stages of dementia
When a person must give up a job
When a person can no longer manage money
When a person can no longer drive safely
When a person can no longer live alone
When you suspect that someone living alone is developing dementia
What you can do
Moving to a new residence
5. Problems arising in daily care
Hazards to watch for
In the house
Outdoors
Riding in the car
Highways and parking lots
Smoking
Hunting
Nutrition and mealtimes
Meal preparation
Mealtimes
Problem eating behaviors
Malnutrition
Weight loss
Choking
When to consider tube feeding
Exercise
Recreation
Personal hygiene
Bathing
Locating care supplies
Dressing
Grooming
Oral hygiene
Incontinence (wetting or soiling)
Urinary incontinence
Bowel incontinence
Cleaning up
Problems with walking and balance; Falling
Becoming chairbound or bedfast
Wheelchairs
Changes you can make at home
Should environments be cluttered or bare?
6. Medical problems
Pain
Falls and injuries
Pressure sores
Dehydration
Pneumonia
Constipation
Medications
Dental problems
Vision problems
Hearing problems
Dizziness
Visiting the doctor
If the ill person must enter the hospital
Seizures, fits, or convulsions
Jerking movements (myoclonus)
The death of the person who has dementia
Cause of death
Dying at home
Hospice and palliative care
Dying in the hospital or nursing home
When should treatment end?
What kind of care can be given at the end of life?
7. Managing the behavioral and neuropsychiatric symptoms of dementia
The six R's of behavior management
Concealing memory loss
Wandering
Why people wander
The management of wandering
Sleep disturbances and night wandering
Worsening in the evening ("Sundowning")
Losing, hoarding, or hiding things
Rummaging in drawers and closets
Inappropriate sexual behavior
Repeating the question
Repetitious actions
Distractability
Clinging or persistently following you around ("Shadowing")
Complaints or insults
Taking things
Forgetting telephone calls
Demands
Stubbornness and uncooperativeness
When the person who has dementia insults the sitter
Using medication to manage behavior
8. Symptoms associated with mood change and suspiciousness
Depression
Complaints about health
Suicide
Alcohol or drug abuse
Apathy and listlessness
Remembering feelings
Anger and irritability
Anxiety, nervousness, and restlessness
False ideas, suspiciousness, paranoia, and hallucinations
Misinterpretation
Failure to recognize people or things (agnosia)
"You are not my husband"
"My mother is coming for me"
Suspiciousness
Hiding things
Delusions and hallucinations
Having nothing to do
9. Special arrangements if you become ill
In the event of your death.
10. Getting outside help
Help from friends and neighbors
Finding information and services
Kinds of services
Having someone come into your home
Adult day care
Short-stay residential care
Planning in advance for home care, day care, and respite care
When the person who has dementia rejects the care
Your own feelings about getting respite for yourself
Locating resources
Paying for care
Should respite programs mix people who have different problems?
Determining the quality of services
Research and demonstration programs
11. You and the person who has dementia
Changes in roles
Understanding family conflicts
Division of responsibility
Your marriage
Coping with role changes and family conflict
A family conference
When you live out of town
When you are not the primary caregiver, what can you do to help?
Caregiving and your job
Your children
Teenagers
12. How caring for a person who has dementia affects you
Emotional reactions
Anger
Embarrassment
Helplessness
Guilt
Laughter, love, and joy
Grief
Depression
Isolation and feeling alone
Worry
Being hopeful and being realistic
Mistreating the person who has dementia
Physical reactions
Fatigue
Illness
Sexuality
If your spouse has dementia
If your impaired parent lives with you
The future
You as a spouse alone
When the person you have cared for dies
13. Caring for yourself
Take time out
Give yourself a present
Friends
Avoid isolation
Find additional help if you need it
Recognize the warning signs
Counseling
Joining with other families : the Alzheimer's Association
Support groups
Excuses
Advocacy
14. For children and teenagers
15. Financial and legal issues
Your financial assessment
Potential expenses
Potential resources
Where to look for the forgetful person's resources
Legal matters
16. Long-term care arrangements
Types of living arrangements
Moving with the person who has dementia
Nursing homes
Finding a long-term care setting outside the home
Paying for care
Guidelines for selecting a long-term care facility
Moving a person to a residential care facility
Adjusting to a new life
Visiting
Your own adjustment
When problems occur in the nursing home or other residential care facility
Sexual issues in nursing homes or other care facilities
17. Preventing and delaying cognitive decline
Usual age-associated changes
Risk factors identify potential targets and possible approaches for decreasing the risk of dementia
Cardiovascular factors
Physical exercise
Social and intellectual activity
Diet
Education
Diabetes
Depression
Toxins
Head injury
Age
Genetics
Medications
18. Brain disorders and the causes of dementia
Mild cognitive impairment
Dementia
Alcohol Use Disorder Associated Dementia
Alzheimer Disease
Amnestic (Korsakoff) Syndrome
Cortico-basal Ganglionic Degeneration
Depression
The frontotemporal dementias
HIV-AIDS
Lewy Body Dementia
Parkinson Disease Associated Dementia
Primary Progressive Aphasia
Progressive Supranuclear Palsy
Traumatic brain injury (TBI or head trauma)
Vascular dementia
Young or early onset dementia
Other brain disorders
Delirium
Stroke and other localized brain injury
Transient ischemic attack
19. Research in dementia
Bogus cures
Research in vascular dementia and stroke
Research in Alzheimer Disease
Structural changes in the brain
Brain cells
Neuroplasticity
Neurotransmitters
Abnormal proteins
Abnormal proteins within brain cells
Infection
Nerve growth factors
Transplants of brain tissue
Metals
Prions
Immunological defects
Head trauma
Drug studies
Epidemiology
Down Syndrome
Old age
Heredity
Gender
Neuropsychological testing
Brain imaging
Keeping active
Effect of acute illness on dementia
Research into the delivery of services
Protective factors
One disease or many?
From the Book - Regular Print - Seventh edition.
1. Dementia
What is dementia?
The person who has dementia
Where do you go from here?
2. Getting medical help for the person who has dementia
The evaluation of the person with a suspected dementia
Finding someone to do an evaluation
The medical treatment and management of dementia
The physician
The nurse
The social worker
The geriatric care manager
The pharmacist
3. Characteristic behavioral symptoms in people who have dementia
The brain, behavior, and personality : why people who have dementia do the things they do
Caregiving: some general suggestions
Memory problems
Overreacting, or catastrophic reactions
Combativeness
Problems with speech and communication
Problems people who have dementia experience in making themselves understood
Problems people who have dementia experience in understanding others
Loss of coordination
Loss of sense of time
Symptoms that are better sometimes and worse at other times
4. Problems in independent living
Mild cognitive impairment
Managing the early stages of dementia
When a person must give up a job
When a person can no longer manage money
When a person can no longer drive safely
When a person can no longer live alone
When you suspect that someone living alone is developing dementia
What you can do
Moving to a new residence
5. Problems arising in daily care
Hazards to watch for
In the house
Outdoors
Riding in the car
Highways and parking lots
Smoking
Hunting
Nutrition and mealtimes
Meal preparation
Mealtimes
Problem eating behaviors
Malnutrition
Weight loss
Choking
When to consider tube feeding
Exercise
Recreation
Personal hygiene
Bathing
Locating care supplies
Dressing
Grooming
Oral hygiene
Incontinence (wetting or soiling)
Urinary incontinence
Bowel incontinence
Cleaning up
Problems with walking and balance; and falling
Becoming chairbound or bedfast
Wheelchairs
Changes you can make at home
Should environments be cluttered or bare?
6. Medical problems
Pain
Falls and injuries
Pressure sores
Dehydration
Pneumonia
Influenza and COVID-19
Constipation
Medications
Dental problems
Vision problems
Hearing problems
Dizziness
Visiting the doctor
If the person with dementia must enter the hospital
Seizures, fits, or convulsions
Jerking movements (myoclonus)
Death of the person who has dementia
The cause of death
Dying at home
Hospice and palliative care
Dying in the hospital or nursing home
When should treatment end?
What kind of care can be given at the end of life?
7. Managing the behavioral and neuropsychiatric symptoms of dementia
The six R's of behavior management
Concealing memory loss
Wandering
Why people wander
The management of wandering
Sleep disturbances and night wandering
Worsening in the evening ("Sundowning")
Losing, hoarding, or hiding things
Rummaging in drawers and closets
Inappropriate sexual behavior
Repeating questions
Repetitious actions
Distractability
Clinging or persistently following you around ("Shadowing")
Complaints or insults
Taking things
Forgetting telephone calls
Demands
Stubbornness and uncooperativeness
When the person who has dementia insults the sitter
Using medication to manage behavior
8. Symptoms associated with mood change and suspiciousness
Depression
Complaints about health
Suicide
Alcohol or drug abuse
Apathy and listlessness
Remembering feelings
Anger and irritability
Anxiety, nervousness, and restlessness
False ideas, suspiciousness, paranoia, and hallucinations
Misinterpretation
Failure to recognize people or things (agnosia)
"My mother is coming for me"
Suspiciousness
Hiding things
Delusions and hallucinations
Having nothing to do
9. Special arrangements if you become ill
Ways to get help
In the event of your death.
10. Getting outside help
Help from friends and neighbors
Finding information and services
Kinds of services
Having someone come into your home
Home care
Adult day care
Short-stay residential care
Planning in advance for home care, day care, and respite care
When the person who has dementia rejects the care
Your own feelings about getting respite for yourself
Locating resources
Paying for care
Should respite programs mix people who have different problems?
Determining the quality of services
Research and demonstration programs
11. You and the person who has dementia
Changes in roles
Understanding family conflicts
Division of responsibility
Your marriage
Coping with role changes and family conflict
A family conference
When you live out of town
When you are not the primary caregiver, what can you do to help?
Caregiving and your job
Your children
Teenagers
12. How caring for a person who has dementia affects you
Emotional reactions
Anger
Embarrassment
Helplessness
Guilt
Laughter, love, and joy
Grief
Depression
Isolation and feeling alone
Worry
Being hopeful and being realistic
Mistreating the person who has dementia
Physical reactions
Fatigue
Illness
Sexuality
If your spouse has dementia
If a parent who has dementia lives with you
The future
You as a spouse alone
When the person you have cared for dies
13. Caring for yourself
Take time out
Give yourself a present
Friends
Avoid isolation
Find additional help if you need it
Recognize the warning signs
Counseling
Joining with other families : the Alzheimer's Association and similar organizations
Support groups
Excuses
Advocacy
14. Financial and legal issues
Your financial assessment
Potential expenses
Potential resources
Where to look for the forgetful person's resources
Legal matters
15. Long-term care arrangements
Types of living arrangements
Moving with the person who has dementia
Nursing homes
Memory care units
Finding a long-term care setting outside the home
Paying for care
Guidelines for selecting a long-term care facility
Moving a person to a residential care facility
Adjusting to a new life
Visiting
Your own adjustment
When problems occur in the nursing home or other residential care facility
Sexual issues in nursing homes or other care facilities
16. Preventing and delaying cognitive decline
Usual age-associated changes
Recalling words and speed of mental performance
Risk factors for dementia
Cardiovascular factors
Physical exercise
Social and intellectual activity
Diet
Education
Diabetes
Depression
Toxins
Head injury
Age
Genetics
Medications
Summary
17. Brain disorders and the causes of dementia
Mild cognitive impairment
Dementia
Alcohol Use Disorder-Associated Dementia
Alzheimer Disease
Amnestic (Korsakoff) Syndrome
Cerebral amyloid angiopathy
Chronic traumatic encephalopathy
Corticobasal ganglionic degeneration
Depression
The frontotemporal dementias
HIV-AIDS dementia
Huntington disease
Lewy Body Dementia
Parkinson Disease Associated Dementia
Primary Progressive Aphasia
Progressive Supranuclear Palsy
Traumatic brain injury (head trauma)
Vascular dementia
Young or early onset dementia
Other brain disorders
Delirium
Stroke and other localized brain injury
Transient ischemic attack
18. Research in dementia
Understanding research
Bogus cures
Research in vascular dementia and stroke
Research in Alzheimer Disease
Structural changes in the brain
Brain cells
Neuroplasticity
Neurotransmitters
Electrical signaling
Abnormal proteins
Abnormal proteins within brain cells
Nerve growth factors
Infection
Prions
Brain (or stem) cell transplants
Metals
Immune system defects
Head trauma
Drug studies
Epidemiology
Down Syndrome
Aging
Heredity and dementia
Sex
Neuropsychological testing
Brain imaging
Keeping physically and mentally active
The effect of acute illness on dementia
Research into the delivery of services
Protective factors
One disease or many?
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